Diabetes Research Projects & Surveys

Research advertised below is provided as a service to the diabetes research community. This research is not specifically endorsed by Diabetes Tasmania.

ENDIA - Australia's largest study into the causes of Type 1 Diabetes

Type 1 Diabetes in children is twice as common as it was 20 years ago. To understand why, the ENDIA (Environmental Determinants of Islet Autoimmunity) Study is the world’s first to follow babies from the pregnancy to determine what factors influence the development of type 1 diabetes (T1D).

This national study aims to follow 1400 children (Australia-wide) who have a first degree relative with T1D to determine interactions between genes and the environment and how they affect the risk of T1D. Follow up will be during the pregnancy up until the child is around 36 months, and on until the child is up to 10 years of age. The primary outcome measure is persistent islet autoimmunity. ENDIA is an observational study, there are no interventions and participation is low risk.

Patients that meet the following criteria may be eligible for ENDIA:

• Pregnant women with T1D;

• Men with T1D who have a partner that is pregnant;

• Pregnant women with an existing child that has T1D;

• Babies less than 6 months of age that have a first degree relative with T1D.

What makes this study internationally unique is the pregnancy data, so enrolling families as early into the pregnancy as possible is key. Recruitment continues until 2018. ENDIA has a Regional Participation Program for those living out with the main recruitment sites to be able to participate from their home.

This study has ethical approval from HRECs across the country and current funding from JDRF Australia and the Helmsley Charitable Trust. Prof Jennifer Couper is the Chief Investigator (SA), supported by other lead investigators including Prof Len Harrison (VIC), Prof Peter Colman (VIC), Dr John Wentworth (Head of TrialNet Australia), Prof Maria Craig (NSW), Prof Bill Rawlinson (NSW), Dr Andrew Cotterrill (QLD), Dr Mark Harris (QLD), A.Prof. Liz Davis (WA), among others.

Referrals across the country are gratefully received by emailing endia@adelaide.edu.au or via the website: www.endia.org.au/index/participation, or calling our Regional Nurse Coordinator, Dani, directly on (08) 8161 8655.

Treatment of Type 2 diabetes and Fatty liver Study

Do you have Type 2 diabetes?

Do you know that many people with type 2 diabetes have fatty livers?

Fatty liver refers to excessive accumulation of fat in the liver. It is commonly associated with obesity and diabetes. It usually causes no symptoms, but in some people it may progress to inflammation and possible liver scarring (Cirrhosis). Fatty liver is also associated with increased risk of cardiovascular diseases.

Although there is no recommended specific treatment for this condition, weight loss and diabetes control is the mainstay of treatment. A team of medical researchers at Macquarie University is studying how treatment of Type 2 diabetes can improve fatty liver condition.

Who is eligible?

  • People with type 2 diabetes who have not yet started treatment or have only recently started(within 1 month)

  • No or minimal alcohol drinking

  • Age >18 years

  • Not pregnant or wanting to be pregnant during the course of study.

What is involved?

  • Duration of the study is up to one year.

  • Three-monthly visits to Macquarie University Hospital outpatient clinic.

  • Each participant will receive individualised specialist care for diabetes and fatty liver.

Feedback on participants' investigations and progress will be provided during the study. - No experimental drug or test will be used. The study follows standard diabetes care protocols. - Patient participants should expect to pay for their own medications, as per usual Medicare and Pharmaceutical Benefits Scheme for management of Type 2 diabetes. - However, blood tests and imaging of liver will be provided free of charge to participants.

To participate in this study or for more information, please contact Dr. Rafid Al-ameri on 0477450355 or email rafid.alameri@students.mq.edu.au

Writing for Health: A new online program for people with diabetes

The University of New South Wales and St Vincent’s Hospital, Sydney, have developed "Writing for Health" - a new online program for people with diabetes. It includes three simple online writing exercises, which aim to improve adjustment to living with diabetes and mental and physical health.

We are looking for volunteers to take part in a trial of this new program and would greatly value your feedback. Participation is free and can be done from your own home.

You may be eligible to take part if you:

  • Have type 1 or type 2 diabetes
  • Are aged 18 years or over
  • Are able to read, write and speak English
  • Are not currently experiencing a significant mental illness

For more information, please visit the Writing for Health website, by following this link

This study has been approved by the St Vincent’s Hospital HREC (Reference Number HREC 13/SVH 379).

Using the Online Environment to Improve Wellbeing and Social Connectedness

The University of Tasmania currently working on a project investigating how social media may promote social connectedness and wellbeing. We are particularly interested in recruiting people who provide informal care for a family member or friend due to a medical condition/illness, and people who receive informal care themselves.

This Social Media Connectedness project has received Ethics Approval (H14610), and is headed by Chief Investigator Dr Rachel Grieve, with Co-Investigators Prof Jenn Scott, Dr Michael Quinn, Dr Kieran Holm (myself), and Mr Josh Westland.

Participants are asked to complete an online survey that aims to help us understand how social media may promote social connectedness and wellbeing, and how social media may be used to help individuals who are seeking social interaction but due to time constraints etc., find face-to-face interaction difficult to organise.

To take part in this study, please follow this link - Read more. They are also on Facebook http://www.facebook.com/socialmediaconnectedness

Feeling In charge of Diabetes Online (FIDO) Study

Principle Investigator: Associate Professor Judy Proudfoot

Living with Type 1 diabetes can be hard work. Self-care is complicated, BGLs can be unpredictable, and juggling the clinical demands of diabetes with the demands of 'real-life' can make it hard to stay motivated. Not surprisingly, many young people with Type 1 diabetes find themselves feeling angry, worried, sad and lonely from time-to-time. If left unchecked for too long, these feelings can make it harder to look after yourself and seriously affect your health.

We are currently looking for young people with Type 1 diabetes to help us find the right way to offer support. We’re researching a program that can be accessed online 24/7 on your computer, tablet, or smartphone. If you take part, you will go into a draw for an iPad.

Specifically, we are looking for people that:

·         Have Type 1 diabetes

·         Are aged 16-25 years and live in Australia

·         Have access to an internet-enabled mobile phone and computer/tablet

Check out our website for full details https://fido.ehat.com.au 

Contact Veronica Vatiliotis (Research Assistant)

Email: myCompass@blackdog.org.au

Phone: (02) 9382 9275


Newly Diagnosed Type 2 Research

Griffith Uni: Researchers want to learn more about how people with type 2 diabetes feel about the food that they eat and their experiences with receiving advice about it.

If you have been diagnosed with type 2 diabetes in the past three months, you are invited to take part in a series of three telephone interviews that will last about 30 minutes each. If you choose to be involved, the three interviews will take place over a six month period. Your participation will remain anonymous.

We want to improve the care and information that health professionals can offer to support those living with type 2 diabetes. Further information about the study, including a participant information and consent sheet, is available from the researchers.

If you are willing to participate or have questions about the research, please contact Lauren Ball or Ruth Davmor via the contact details provided below.


Lauren Ball, PhD

Chief Investigator

School of Allied Health Sciences

Griffith University

Ph: (07) 5678 7342

Email: L.Ball@griffith.edu.au


Ruth Davmor

Interviewer

School of Allied Health Sciences

Griffith University

Email: R.Davmor@griffith.edu.au